Donate to help Joany and all the children Ondine

Donate to help Joany and all the children Ondine

Donate for Joany and all kids affected by ondine’s curse

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Donation Total: €120.00

For more than 20 years, the French Association for Ondine Syndrome supports the families of patients and finances research work to find a drug to treat this rare, serious and incurable disease.

Thanks to your donations, we hope that one day we will foind a cure and be able to let our children live without being on machine life support and without permanent vital risk.

 

Thank you. We are counting on you.

Sergio, Xénia and all the Ondines families