Donate to help Joany and all kids affected by Ondine Syndrom

Donate to help Joany and all kids affected by Ondine Syndrom

For more than 20 years, the French Association for Ondine Syndrome supports the families of patients and finances research work to find a drug to treat this rare, serious and incurable disease.

Thanks to your donations, we hope that one day we will foind a cure and be able to let our children live without being on machine life support and without permanent vital risk.

Donate for Joany and all kids affected by ondine’s curse

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Donation Total: €120.00

We thank you very much. Sergio & Xenia