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Several teams in different countries are working to find a cure for this rare disease that affects only 1200 people worldwide.

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Every euro counts! Each donation is donated to research laboratories to find durable solutions against the Ondine Syndrome.

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Join us to help improve the daily lives of each undead and defeat the disease all together.

[/pm_ln_feature_box][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row][vc_column][pm_ln_content_divider bg_color=”#00b7c2″ margin_top=”50″ margin_bottom=”50″][/vc_column][/vc_row][vc_row][vc_column width=”1/2″][vc_video link=”https://vimeo.com/236280738″][/vc_column][vc_column width=”1/2″][vc_column_text] “My name is Anthony, I live with Ondine Syndrome. I lived with a tracheostomy for 10 years. Today, I am broken down with a mask. I totally stop breathing as soon as I fall asleep, so I have to immediately connect to my respirator. I also need it in case of fatigue, stress, fever and also if I have to concentrate for a long time. I can not practice all the sports I would like but I try to do as much as possible as soon as my health allows it: cycling, skiing, swimming. But, I get tired quickly. I have a dream that doctors will heal me someday. Later, I would like to be a movie actor in action movies! “[/vc_column_text][pm_ln_standard_button btn_text=”Learn More” url=”/le-syndrome-dondine/” margin=”10″ color=”#00cbf4″ textcolor=”#3d3d3d” link=”/hope/shortcodes/”][/vc_column][/vc_row][vc_row el_class=”pm-containerPadding-bottom-60″][vc_column][vc_empty_space height=”20px”][pm_ln_content_divider bg_color=”#00b7c2″ margin_top=”10″ margin_bottom=”0″][/vc_column][/vc_row][vc_row full_width=”stretch_row” parallax=”content-moving” parallax_image=”4127″ el_class=”pm-containerPadding-top-10 pm-containerPadding-bottom-30″][vc_column][vc_row_inner el_class=”cta_container”][vc_column_inner width=”1/2″][vc_column_text]

A united community!

[/vc_column_text][pm_ln_content_divider height=”3″ width=”50″ bg_color=”#acdb05″ margin_top=”20″ margin_bottom=”20″][vc_column_text]The French Association of Ondine Syndrome is part of an international network that works with laboratories and affected families to find a solution to fight the disease.

Discover the entire network[/vc_column_text][pm_ln_standard_button btn_text=”CCHS Network” url=”https://afsondine.org/reseau-cchs/” margin=”20″ color=”#00cbf4″ textcolor=”#3d3d3d” type=”large” link=”/hope/shortcodes”][/vc_column_inner][vc_column_inner width=”1/2″][vc_video link=”https://vimeo.com/236280906″][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row][vc_column][pm_ln_content_divider bg_color=”#00b7c2″ margin_top=”50″ margin_bottom=”50″][pm_ln_sponsors_carousel sponsors_text=” Our Sponsors”][/vc_column][/vc_row]